We the scientists

how a daring team of parents and doctors forged a new path for medicine
Amy Dockser Marcus
Book - 2023

"Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors in search of a cure. Their social experiment reveals new pathways for treating disease and conducting research"--

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Barcode Status Material Type CallNumber Availability
37413320567516 Available Non-fiction 618.92 MARCUS  Place a Hold
Bibliographic Details
Main Author: Marcus, Amy Dockser (Author)
Format: Book
Language:English
Published: New York : Riverhead Books, 2023.
Edition:First edition.
Subjects:

MARC

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245 1 0 |a We the scientists :  |b how a daring team of parents and doctors forged a new path for medicine /  |c Amy Dockser Marcus. 
246 3 0 |a How a daring team of parents and doctors forged a new path for medicine 
250 |a First edition. 
263 |a 2302 
264 1 |a New York :  |b Riverhead Books,  |c 2023. 
264 4 |c Ã2023 
300 |a xxx, 222 pages ;  |c 22 cm 
336 |a text  |b txt  |2 rdacontent 
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504 |a Includes bibliographical references (pages 203-213) and index. 
505 0 |a Introduction: We the scientists -- The here and now -- A different fear -- The fishing expedition -- The catalysts -- The opera singer -- The broad jump -- New hit -- Reverberations -- Persuasion -- The greater good -- Complications -- The community's drug -- Lilies and doves -- The cathedral of science. 
520 |a "Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors in search of a cure. Their social experiment reveals new pathways for treating disease and conducting research"--  |c Provided by publisher. 
650 0 |a Niemann-Pick diseases  |x Treatment. 
650 0 |a Rare diseases  |x Patients. 
650 0 |a Genetic disorders in children  |x Patients  |x Family relationships. 
650 0 |a Parents of children with disabilities. 
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