We the scientists
how a daring team of parents and doctors forged a new path for medicine
We the scientists
how a daring team of parents and doctors forged a new path for medicine
Book - 2023
"Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors in search of a cure. Their social experiment reveals new pathways for treating disease and conducting research"--
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| Barcode | Status | Material Type | CallNumber |
|---|---|---|---|
| 37413320567516 | Sẵn có | Non-fiction | 618.92 MARCUS |
| Tác giả chính: | |
|---|---|
| Định dạng: | Sách |
| Ngôn ngữ: | English |
| Được phát hành: |
New York :
Riverhead Books,
2023.
|
| Phiên bản: | First edition. |
| Những chủ đề: |
MARC
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|---|---|---|---|
| 001 | 892325 | ||
| 008 | 220728t20232023nyu e b 001 0 eng | ||
| 005 | 20230309210227.7 | ||
| 010 | |a 2022023324 | ||
| 035 | |a (OCoLC)892325 | ||
| 040 | |a DLC |b eng |e rda |c DLC |d OCLCF |d BDX |d OCO |d JVK |d GK5 |d IUK |d VP@ |d DCB |d UAP |d UAG | ||
| 020 | |a 9780399576133 |q (hardcover) | ||
| 020 | |a 0399576134 |q (hardcover) | ||
| 035 | |a (OCoLC)1338231536 | ||
| 042 | |a pcc | ||
| 082 | 0 | 0 | |a 618.92/0042 |2 23/eng/20220802 |
| 092 | |a 618.92 MARCUS | ||
| 049 | |a UAGA | ||
| 100 | 1 | |a Marcus, Amy Dockser, |e author. | |
| 245 | 1 | 0 | |a We the scientists : |b how a daring team of parents and doctors forged a new path for medicine / |c Amy Dockser Marcus. |
| 246 | 3 | 0 | |a How a daring team of parents and doctors forged a new path for medicine |
| 250 | |a First edition. | ||
| 263 | |a 2302 | ||
| 264 | 1 | |a New York : |b Riverhead Books, |c 2023. | |
| 264 | 4 | |c Ã2023 | |
| 300 | |a xxx, 222 pages ; |c 22 cm | ||
| 336 | |a text |b txt |2 rdacontent | ||
| 337 | |a unmediated |b n |2 rdamedia | ||
| 338 | |a volume |b nc |2 rdacarrier | ||
| 504 | |a Includes bibliographical references (pages 203-213) and index. | ||
| 505 | 0 | |a Introduction: We the scientists -- The here and now -- A different fear -- The fishing expedition -- The catalysts -- The opera singer -- The broad jump -- New hit -- Reverberations -- Persuasion -- The greater good -- Complications -- The community's drug -- Lilies and doves -- The cathedral of science. | |
| 520 | |a "Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors in search of a cure. Their social experiment reveals new pathways for treating disease and conducting research"-- |c Provided by publisher. | ||
| 650 | 0 | |a Niemann-Pick diseases |x Treatment. | |
| 650 | 0 | |a Rare diseases |x Patients. | |
| 650 | 0 | |a Genetic disorders in children |x Patients |x Family relationships. | |
| 650 | 0 | |a Parents of children with disabilities. | |
| 938 | |a Brodart |b BROD |n 132560119 | ||
| 994 | |a C0 |b UAG | ||
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| 952 | f | f | |p Standard Circulation |a City of Spokane |b Spokane Public Library |c Branches |d Shadle |t 0 |e 618.92 MARCUS |i Non-fiction |m 37413320567516 |