We the scientists
how a daring team of parents and doctors forged a new path for medicine
Book - 2023
"Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors in search of a cure. Their social experiment reveals new pathways for treating disease and conducting research"--
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Barcode | Status | Material Type | CallNumber | Availability |
---|---|---|---|---|
37413320567516 | Available | Non-fiction | 618.92 MARCUS | Place a Hold |
Main Author: | |
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Format: | Book |
Language: | English |
Published: |
New York :
Riverhead Books,
2023.
|
Edition: | First edition. |
Subjects: |
MARC
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020 | |a 0399576134 |q (hardcover) | ||
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049 | |a UAGA | ||
100 | 1 | |a Marcus, Amy Dockser, |e author. | |
245 | 1 | 0 | |a We the scientists : |b how a daring team of parents and doctors forged a new path for medicine / |c Amy Dockser Marcus. |
246 | 3 | 0 | |a How a daring team of parents and doctors forged a new path for medicine |
250 | |a First edition. | ||
263 | |a 2302 | ||
264 | 1 | |a New York : |b Riverhead Books, |c 2023. | |
264 | 4 | |c Ã2023 | |
300 | |a xxx, 222 pages ; |c 22 cm | ||
336 | |a text |b txt |2 rdacontent | ||
337 | |a unmediated |b n |2 rdamedia | ||
338 | |a volume |b nc |2 rdacarrier | ||
504 | |a Includes bibliographical references (pages 203-213) and index. | ||
505 | 0 | |a Introduction: We the scientists -- The here and now -- A different fear -- The fishing expedition -- The catalysts -- The opera singer -- The broad jump -- New hit -- Reverberations -- Persuasion -- The greater good -- Complications -- The community's drug -- Lilies and doves -- The cathedral of science. | |
520 | |a "Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors in search of a cure. Their social experiment reveals new pathways for treating disease and conducting research"-- |c Provided by publisher. | ||
650 | 0 | |a Niemann-Pick diseases |x Treatment. | |
650 | 0 | |a Rare diseases |x Patients. | |
650 | 0 | |a Genetic disorders in children |x Patients |x Family relationships. | |
650 | 0 | |a Parents of children with disabilities. | |
938 | |a Brodart |b BROD |n 132560119 | ||
994 | |a C0 |b UAG | ||
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