Living well with a serious illness

a guide to palliative care for mind body and spirit
Robin Bennett Kanarek
Book - 2023

"Robin Bennett Kanarek was a registered nurse working with patients suffering from chronic medical conditions when her ten-year-old son was diagnosed with leukemia. As her son endured grueling treatments, Robin realized how often medical professionals overlook critical psychological, emotional, and spiritual support for people with life-threatening illnesses. Living Well with a Serious Illness is the culmination of decades of Robin's work to advance the field of palliative care. Although palliative care is often associated with hospice and end-of-life planning, Kanarek argues for a more expanded definition that incorporates palliative care earlier in patients' journeys. Living Well with a Serious Illness helps patients and their caregivers understand: what palliative care entails ; how to access the support they need when going through a serious illness ; what questions to ask medical professionals ; how to navigate advanced care planning ; definitions of common terminology used with end-of-life planning ; the importance of spiritual care, coping strategies, and emotional support ; how to become an advocate for palliative care. This book illuminates the importance of seeing patients as individuals who can benefit from care for their body, mind, and spirit -- the core tenet of palliative care."--Publisher description.

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Bibliographic Details
Main Author: Kanarek, Robin B. (Author)
Format: Book
Language:English
Published: Baltimore : John Hopkins University Press, 2023.
Series:Johns Hopkins Press health book.
Subjects:

MARC

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504 |a Includes resources, bibliographical references (pages 177-199) and index 
505 0 |a Introduction: David's story -- What is palliative care? -- Barriers to palliative care : taking care of the person versus fighting the disease -- How we want to die : palliative care's benefits for patients and their loved ones -- How to get the care you want : knowing what to ask for, what to expect, and what to demand -- How to cope when illness changes everything : quality-of-life care includes the family -- Putting it all together : creating an action plan for when the end is near -- Spirituality and well-being : care of the spirit matters too -- Grief : tapping into restorative sources after goodbye -- Making palliative care mainstream : what legislators, philanthropists, educators, and you can do -- Epilogue: David's legacy : the Kanarek Family Foundation. 
650 0 |a Terminal care. 
650 0 |a Palliative treatment. 
650 0 |a Death. 
650 0 |a Families of the terminally ill  |x Psychology. 
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