A face for Picasso

coming of age with Crouzon Syndrome
Ariel Henley
Book - 2021

The author describes how she and her identical twin sister were born with Crouzon syndrome, a rare condition where the bones in the head fuse together prematurely. Details how she and her sister endured numerous surgeries growing up, and their efforts to appear normal and gain acceptance. The author reflects on how she learned to live with a facial disfigurement and what she discovered about beauty, sisterhood, and courage.

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Bibliographic Details
Main Author: Henley, Ariel, 1992- (Author)
Format: Book
Language:English
Published: New York : Farrar Straus Giroux, 2021.
Edition:First edition.
Subjects:

MARC

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500 |a "Please note that this book contains mentions of disordered eating and vivid descriptions of surgery and post-surgival recovery, including vomiting, severe pain, and depression"--Copyright page. 
504 |a Includes bibliographical references. 
510 3 |a Booklist Starred Reviews,  |b 11/1/2021 
510 3 |a Kirkus Review,  |b 10/1/2021 
510 3 |a Publishers Weekly,  |b 10/4/2021 
510 3 |a School Library Journal,  |b 3/2022 
520 |a The author describes how she and her identical twin sister were born with Crouzon syndrome, a rare condition where the bones in the head fuse together prematurely. Details how she and her sister endured numerous surgeries growing up, and their efforts to appear normal and gain acceptance. The author reflects on how she learned to live with a facial disfigurement and what she discovered about beauty, sisterhood, and courage. 
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586 |a Schneider Family Award, 2022 
586 |a YALSA Award for Excellence in Nonfiction, 2023 
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